These past 2 weeks have been quite a ride.
For those of you who follow me on facebook know I am talking about Landon's "head thing" as we call it.
It all started on new years eve. I was at my moms house and she was holding Landon in a sitting position on her lap. He all of the sudden started bobbling his head. It was very strange. He did it a couple of times and my mom and I agreed we should probably take him to immediate care to get it checked out. The Dr that saw him that day said it was nothing to worry about, and we went on our merry little way.
On January 20th, he was jumping in his jumpee and he was looking up at the fan (he has always been fascinated with fans and light fixtures) when he started doing the head thing again. Only this time, it looked worse because his eyes were looking up and he was bobbing his head from side to side. Throughout the night, he did it more and more. Austin and I decided to take him back to the immediate care. Once again, the Dr said it was nothing. Landon even did the head thing for the Dr and he still said it was nothing. I wasn't so convinced. The next day I took him to his pediatrician and he said he thought it was "Spasmus Nutans" which is a typically harmful disorder that he will grow out of. He then said he wanted a second opinion and scheduled us with a neurologist. I did some research on "Spasmus Nutans" and even watched videos and it doesn't seem like that's what he has. In fact, a description stated that in order to be diagnosed with spasmus nutans, one must display nystagmus (rapid eye movement back and forth, it is also the main symptom) which Landon does not have.
I thought I figured it out when I discovered the medication he was on (singulair) causes dizziness. I immediately stopped giving it to him thinking that was it. It has been a week without it and he is still doing "the head thing."
I've spent the last week pouring over thousands of websites and videos trying to find something that looks/sounds like what Landon is doing, but I have come up empty handed. There are moments when he does it that it almost looks normal, but then there are other moments that when he does it, something in my gut is telling me that it just doesn't look right. The funny thing is, he mainly does it when looking up, (but also does it other times.) He is very responsive and sometimes even smiles while doing it, will stop if you distract him, and sometimes moves his shoulders along with his head. It seriously looks like he is dizzy and is moving his head in a circle.
The neurologist we are scheduled to see wanted to do an EEG today to rule out any seizures. The tech had to give him a dose and a half of the sedating medicine in order to get him to sleep. Needless to say, he was acting pretty drunk when he awoke this evening. Whats weirder is it seems like his head thing got worse when he was on this medicine. I just don't know. We go back Monday to actually see the Neurologist and he will give us the results then. You have no idea how anxious I am about it. I keep going over scenarios in my head about what he will say. "He is perfectly healthy, he will outgrow this eventually." "His EEG results came back a little on the iffy side, we want to run more tests," "Your son has (insert horrible disease,) he will never be normal" I mean you can imagine I am driving myself crazy.
Since reading all this info on websites, I am also now watching Landon's every move questioning "Is that NORMAL?!" "Do NORMAL babies do that?!" Its crazy. Like today I noticed Landon has found his right hand, he will look at while putting his thumb and pointer finger together like its the most fascinating thing, then he will move on to something else. Is it normal for a 7 month old to stare at his hand while moving it?
I love my son more than words can even say. He is my world. I am being honest when I say, if they tell me something is really wrong with him, I will be destroyed. I know things could be worse, and I know God is doing this for a reason, maybe he is testing me, maybe he knows I'm stronger than i think I am. I am just waiting for the day that this will all be over and we can go on raising our child normally (if there is such a thing.) For now, all I can do is pray that God will have answers for us on Monday and we can move on. Even if the answers aren't what we want, I am praying for the strength to go on.
